The first daughter of my grandmother was born
with almond-shaped eyes, a weak heart, and persistent congestion. As
Yvonne was their first child, and as medical advances were not what they are
today, my grandparents didn't know that something was not right, not normal,
for quite some time. In fact, Yvonne was well into her second year before
the doctors broke the heart-breaking news to my grandparents: she was
mongoloid, "retarded," and, for the sake of the young family and the additional
children they were sure to have, they should consider institutionalizing her.
My grandmother refused. As a result, Yvonne
lived in a home filled (eventually) with six brothers and sisters, love, work, energy, and
chaos. She never attended school; instead she stayed at home and took
care of her baby dolls, her magazine collection, and her room.
To her
brothers and sisters, Yvonne, Bonnie as they called her, was both the oldest
and the youngest child. Although she was theoretically the oldest, her
siblings were fiercely protective of their almond-eyed little sister.
They shielded her from everything harmful: teasing, danger, fear,
difficulties--in essence, the outside world. My mother claims that the
Johnson kids evaluated the worth of a person based solely on the way they treated
Yvonne. She also claims she knew my dad was "the one" because he
immediately bonded with her big, little sister. In fact, Yvonne fell in
love with him first, which was revealed when her almond-shaped eyes lit up each time he came to their home.
My first recollection of Yvonne doesn't involve
her physical presence. Instead, my older cousin, John, and I were playing
in grandma's back yard and he told me about her. He whispered she was a "blue baby" and when I didn't seem shocked, he added that she drank Draino.
My 4-year old mind didn't know how to process and connect these pieces of
information. I envisioned a smaller version of her playing under the
kitchen sink, drinking Draino, choking, and turning blue. I even imagined
her foaming at the mouth. I knew by his tone and secretive glances that he probably shouldn't be telling me,
but it didn't dawn on me that he was explaining the reason for her problems.
In truth, I hadn't yet recognized that she was different. Because she
loved to play dolls with me and functioned well at my level, I just thought of
her as my friend--someone like me.
But that conversation planted a seed and I
began to study her. I began to catalog her differences: she was
the biggest person in the primary class, outsiders struggled
understanding her speech, she did not run and
play with my cousins and me when we played outside, no-one bossed her around,
and my grandpa was gentle with her in a way that he was not with the rest of us.
His love for us was demonstrated brusquely and unexpectedly, but she was
never the recipient of gruff whisker burns, a heavy swat on the behind, or a
quick jerk of her legs just when she had sprawled out for a nap or an hour in
front of the television.
When I was five, we moved in next door to
grandma and I subsequently developed a need to protect Yvonne too. After
kindergarten one day, I invited a friend over to play. Yvonne walked from
grandma's house to ours for a surprise visit. Although it wasn't more
than 100 yards, her weak heart struggled from the exertion. When she
arrived, she was panting, her face was purple, and her typically slurred speech
was more jumbled than usual. My friend looked at her, backed into a
corner, began to cry, and said she wanted to go home. I don't know if I felt shame or anger, but I too wanted her to go home. From
then on, I carefully selected friends--friends that had already met my special
aunt, friends that didn't notice that she wasn't a large five-year old child.
She died when I was 8 years old. I heard my parents talking in the middle of the night and I knew something was wrong. I eavesdropped for a few minutes and heard her name, so I got up and questioned them. When they told me, I cried. It is my first memory of tears.
She died before I could really understand
how different she was. She died before I knew that it was not normal to
have giant children as friends. She died before I could categorize her as
"other." But she did live long enough to retard my own development
of the fear of difference. She was for me, I now believe, an almond-eyed, weak-hearted,
unexpected, and most valued teacher.
Written February 15, 2015

This is beautiful. Beautifully written and beautifully experienced. You are my soul sister.
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